13 Jun 2002 johnnyb   » (Journeyer)

I just realized that I had failed to post this. The last two weeks have been very amazing. Basically, God has been busy at work healing my two-year-old.

First, he had cardiomyopathy that was caused by his mitochondrial condition. A year and a half ago, the doctors said that his heart would always be weak for as long as he lived - there was no possiblity of recovery. Of course, two weeks ago we had another echocardiogram for a checkup, which showed his heart having normal function!

Anyway, in addition, he is learning to walk quite well. Very good for a kid the neuromuscular specialist said would never have the strength even to sit up.

He's also two-and-a-half. That beats the first estimate of his life span (3 days). The second (9 months). And the third (2 years). They also thought that he would be constantly declining. Instead, he is constantly doing better!

Also, mitochondrial disease (Cytochrome-C oxidase deficiency, to be specific in his case) is a muscle disease. According to his doctors, he is showing none of the symptoms of muscle degeneration that are supposed to come with these types of muscle disease.

He is not fully healed. He still has a feeding tube (it used to be because he couldn't eat, now it's because he's stubborn). He still can't talk. However, God seems to be healing him a little at a time.

Anyway, just had to post! Praise God!

Latest blog entries     Older blog entries

New Advogato Features

New HTML Parser: The long-awaited libxml2 based HTML parser code is live. It needs further work but already handles most markup better than the original parser.

Keep up with the latest Advogato features by reading the Advogato status blog.

If you're a C programmer with some spare time, take a look at the mod_virgule project page and help us with one of the tasks on the ToDo list!